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This is a (printer friendly) extract from The Contact a Family website, which is one of the leading information resources for families of disabled children and those who work with them. The full online version of this page can be found at
http://www.cafamily.org.uk/medicalinformation/links/overseasorganisations.html

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Overseas organisations for specific conditions and rare disorders

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Australia

Association of Genetic Support of Australasia (AGSA)
http://www.agsa-geneticsupport.org.au

Canada

Canadian Organization for Rare Disorders
http://raredisorders.ca

Europe

European Organization for Rare Disorders
http://www.eurordis.org

France

Alliance Maladies Rares
http://www.alliance-maladies-rares.org

Germany

Bundesarbeitsgemeinschaft Hilfe für Behinderte e.V.
http://www.bag-selbsthilfe.de

Netherlands

Vereniging Samenwerkende Ouder- en Patiëntenorganisaties
http://www.vsop.nl

New Zealand

Parent to Parent New Zealand
http://www.parent2parent.org.nz

Norway

Senter for Sjeldne Funksjonshemningler
http://www.frambu.no

USA

National Organization for Rare Disorders (NORD)
Web: http://www.rarediseases.org

Information last updated April 2011.

 


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