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This is a (printer friendly) extract from The Contact a Family website, which is one of the leading information resources for families of disabled children and those who work with them. The full online version of this page can be found at
http://www.cafamily.org.uk/medicalinformation/links/overseasorganisations.html

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Overseas organisations for specific conditions and rare disorders

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Australia

Association of Genetic Support of Australasia (AGSA) Web: http://www.agsa-geneticsupport.org.au

Canada

Canadian Organization for Rare Disorders
Web: http://www.cord.ca

Europe

European Organization for Rare Disorders
Web: http://www.eurordis.org

France

Alliance Maladies Rares
Web: http://www.alliance-maladies-rares.org

Germany

Bundesarbeitsgemeinschaft Hilfe für Behinderte e.V.
Web: http://www.bagh.de

Denmark

KMS
Web: http://www.kms-danmark.dk

Netherlands

Vereniging Samenwerkende Ouder- en Patiëntenorganisaties
Web: http://www.vsop.nl

New Zealand

Parent to Parent New Zealand
Web: http://www.parent2parent.org.nz

Norway

Senter for Sjeldne Funksjonshemningler
Web: http://www.frambu.no

USA

Birth Defect Research for Children
Web: http://www.birthdefects.org

National Organization for Rare Disorders (NORD)
Web: http://www.rarediseases.org

MUMS National Parent-to-Parent Network
Web: http://www.netnet.net/mums

Self-Help Clearinghouses
Web: http://www.mentalhelp.net/selfhelp/selfhelp.php?id=859

 

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