Association of Genetic Support of Australasia (AGSA) Web: http://www.agsa-geneticsupport.org.au
Canadian Organization for Rare Disorders
Web: http://www.cord.ca
European Organization for Rare Disorders
Web: http://www.eurordis.org
Alliance Maladies Rares
Web: http://www.alliance-maladies-rares.org
Bundesarbeitsgemeinschaft Hilfe für Behinderte e.V.
Web: http://www.bagh.de
KMS
Web: http://www.kms-danmark.dk
Vereniging Samenwerkende Ouder- en Patiëntenorganisaties
Web: http://www.vsop.nl
Parent to Parent New Zealand
Web: http://www.parent2parent.org.nz
Senter for Sjeldne Funksjonshemningler
Web: http://www.frambu.no
Birth Defect Research for Children
Web: http://www.birthdefects.org
National Organization for Rare Disorders (NORD)
Web: http://www.rarediseases.org
MUMS National Parent-to-Parent Network
Web: http://www.netnet.net/mums
Self-Help Clearinghouses
Web: http://www.mentalhelp.net/selfhelp/selfhelp.php?id=859