What do the MAP do?

Who sits on the MAP?

How is each entry checked?

What else can we do for you?

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Contact a Family has a Medical Advisory Panel to assist in providing medical information to families that have disabled children and the professionals that work with these families. To see who sits on this panel and their qualifications click here. We also work with a large number of medical experts, who generously give their time to provide relevant up-to-date information on hundreds of medical conditions and rare disorders.

The entries in our Directory are designed to give an overview of the condition and are written so that they are accessible for parents and carers as well as professionals.

The day-to-day management of The Contact a Family Directory is the responsibility of Cheryl Lenny, Rare Disorders Information Officer. Cheryl has a BSc Honours degree in Biology and more than 4 years experience in the scientific communications sector. If you have any questions or comments about the Directory email: cheryl.lenny@cafamily.org.uk

If you have any questions related to our website please contact the Web Editor, Serena Shani, email: serena.shani@cafamily.org.uk or tel: 020 7608 8743.