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Medical conditions and support groups

Families with disabled children and professionals working with them will need to have some understanding of the child’s medical condition and how it affects the child.

Finding reliable medical information can be difficult and stressful, especially if the condition is less common.

Contact a Family Directory

The Contact a Family Directory is a unique resource containing information on over 1000 long term medical conditions and rare disorders including details of UK family support groups where available. Information in the directory is written and endorsed by leading medical experts to ensure it is up to date and accurate.

Find out about a child's condition

Families say they appreciate it when people find out about their child's condition as it helps them feel more understood and less isolated. Children's centres can use the online version of the directory - find out more here.Alternatively ring our free helpline for information on a childs condition.

Contact a Family parent guides

We produce a wide range of guides on many aspects of bringing up a disabled child. From financial help available, to family and relationships and legal rights at work - we can help.
Click here to browse our publications and order.

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