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This is a (printer friendly) extract from The Contact a Family website, which is one of the leading information resources for families of disabled children and those who work with them. The full online version of this page can be found at
http://www.cafamily.org.uk/professionals/research/researchandreports.html

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Research and reports

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Out of reach: benefits for disabled children

  • Published December 2006

Despite a range of government initiatives aiming to reduce child poverty and improving support for disabled children, families affected by disability continue to experience high levels of poverty and social exclusion.

Contact a Family and Child Poverty Action Group have published research looking at the problems faced by families with disabled children accessing welfare entitlements.

Caring for sick or disabled children: Parents' experiences of combining work and care

  • Published November 2006

This study tracked parent carers of sick or disabled children over a four-year period, and gives a voice to their experiences, attitudes and aspirations in relation to combining paid employment and unpaid caring.

Many needed (and wanted) to work to support their families and to have an additional focus away from their caring role. The challenges of combining work and care are particularly significant for parents of sick or disabled children, whose children require more and different parental support, often over a longer period.

Commissioned by Carers UK and Contact a Family, as part of the ACE National (Action for Carers and Employment) partnership.

Poverty and reform of tax credits

  • Published July 2006

Families with disabled children are likely to be poor. These families have higher expenses and lower incomes. Around half of disabled children grow up in, or on the margins of poverty.

Open wide: Families' experiences of accessing dental care for their disabled child

  • Published September 2005

In May, June and July 2005, UK parents with a child with a disability were surveyed on their experiences of NHS dentistry.

Debt and disability: The impact of debt on families with disabled children

  • Published 2004

In 2004, Contact a Family conducted a survey into debt in conjunction with the Family Fund.

Everybody here? Play and leisure for disabled children and young people

  • Published 2002

Survey of families experiences of accessing play and leisure services in the UK.

Website surveys

Contact a Family conducts regular surveys through online questionnaires on our website.

Counting the costs

  • August 2008

Contact a Family conducted research into how rising living costs have impacted on families with disabled children.

Flexible enough?

  • February 2004

Contact a Family conducted research into parents knowledge and use of flexible employment rights.

Childcare costs

  • December 2004

Childcare can be a problem for families with disabled children due to the dual difficulty of cost and access to suitable childcare.

National service framework

Contact a Family asked disabled young people and people who care for a disabled child for their views on the National service framework (NSF).

Relationships - No time for us

  • Published 2003

Contact a Family asked parents of disabled children what effect they thought having a disabled child had had on their relationship.

 

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