This page contains the following sections:

• Terms of Use
• Privacy Statement
• Cookies
• Shopping - Security, Cancellations, Returns and Refunds
• Donations
• Linking from Contact a Family's website
• Feedback
• Complaints
• Advertising and Sponsorship

Terms of Use

Please read these Terms of Use ("Terms") carefully before using our websites further. These Terms are a legal document which sets out your rights and obligations, and those of Contact a Family, a company limited by guarantee and registered in England under registration No. 1633333, in relation to our websites and the services offered by Contact a Family through them. Use of our websites constitutes your acceptance of these Terms, which take effect on the date that you first use our websites. If you do not agree to these Terms (note in particular the disclaimers at Terms 6 and 7) please do not use our websites.

1. Definitions Access and use of our websites is provided by Contact a Family. References in these Terms to "we" or "us" or "our" refer to Contact a Family. Our websites include www.cafamily.org.uk, lists.cafamily.org.uk, www.free2build.com/stores/cafamily/shophome.php and www.makingcontact.org

2. Modifications Contact a Family reserves the right to change these Terms at any time. Please check these Terms on a regular basis for changes. Your continued use of the site after changes are posted will mean you accept the Terms as modified by the posted changes.

3. Accessing our websites Before accessing our websites you should obtain permission to do so from the telephone bill payer. Please note that information sent by e-mail is at your own risk as unfortunately security cannot be guaranteed.

4. Your use of our websites You agree to use our websites only for lawful purposes, and in a manner that does not infringe the rights of anyone else, nor restrict or inhibit their use and enjoyment of our websites. You undertake to register for any of our services using accurate and current information about yourself and/or your family members - including your correct name, address and any other requested details.

5. Copyright and trademarks

a. All material on our websites is the copyright of Contact a Family or third parties. You may view the contents of our websites on screen. Material submitted by users becomes the copyright of Contact a Family. By submitting any material to the content of our websites, you: are representing that you are fully entitled to do so; grant us a non-exclusive, royalty-free, non-terminable licence right to copy, modify, distribute, show in public and create derivative works from that material in any form, anywhere; and authorise us to adapt the relevant material in the course of doing so, and so waive your moral rights to object to any derogatory treatment, or to be identified as the author, of the material in question.

You are permitted to print one copy of reasonable extracts from our websites for your personal use or private study and to save one copy of such reasonable extracts to your local hard disk for your personal use or private study. Apart from this and other than as authorized in Term 5 (b) below, no part of our websites or of any material on them may be reproduced in any form whatsover or translated without first obtaining the written permission of Contact a Family or any other copyright holder. If you require any further information on permitted use, or a licence to republish any material, please fill out the request form

b. Any material on our websites which is under the copyright of Contact a Family may be reproduced for teaching or study purposes only without obtaining our prior consent. You may print and copy the pages for your private study or for teaching purposes in schools, colleges or universities, provided in each case that:

• copyright and source indications are also printed and copied
• no modifications are made to the materials and they are not used as part of any other publication
• the document is printed and copied entirely and is not used in a derogatory or misleading context
• a maximum of 30 copies are made.

c. If you are not sure whether or not any material can be printed or copied without first obtaining our permission please contact us first via the request form

d. No other use of material in our websites may be made without first obtaining our written permission. In particular, material may not be incorporated in any other work or publication, whether in hard copy or electronic form and commercial use or publication of any material on our websites is strictly prohibited (other than as necessary for the purpose of viewing the site in the course of business).

e. If you wish to use any material on our websites other than in accordance with Term 5 (b) above please e-mail your request via the request form

6. Disclaimer Contact a Family has tried to ensure that the contents of our websites are accurate. However, Contact a Family does not represent or warrant that the information accessible via our websites is accurate, complete or up to date. Price and availability of information is subject to change without notice. Our websites are made available for public use solely on the basis that Contact a Family excludes to the extent lawfully permitted all liability whatsoever for any loss or damage arising out of use of our websites or reliance upon their contents. Contact a Family is not a medical organisation, therefore we can only provide general information that is not intended to be a substitute for a proper medical assessment. If you have a specific question about a condition, we recommend that you obtain further information from your medical practitioner. The information contained on our websites was correct at the time of writing. However, due to research and medical advances, the content may not be completely up to date.

7. Disruption We do not warrant that the functions contained in our websites will be uninterrupted or error free, that defects will be corrected, or that our websites or the servers that make them available are free of viruses or bugs or represent full functionality, accuracy or reliability of the materials. We cannot accept any liability for any loss, disruption or damage to your data or your computer system which may occur as a result of you using our websites. There may also be times when our services become inaccessible as a result of technical difficulties experienced by Contact a Family or on the Internet; we will, however, use reasonable skill and care to overcome these difficulties where they are within our control. Please note that there will be no refund of fees for withdrawal, modification or unavailability of our services. For security or other reasons, we may require you to change password or other information which facilitates access to our services.

8. Misuse of our services We reserve the right in our sole discretion to deny any user access to our websites or any part of them without prior notice. We also reserve the right to edit, or require a user to edit, material posted by them on our websites, if the relevant user or material appears to us to be in breach of any provision of these Terms. Any person whose access has been suspended or terminated must not re-register for, or re-access, our websites without our prior consent. You are responsible for everything which is done on or through our services while you are logged on to our service or through your e-mail address(es).

9. The Users Role - Users must not include an e-mail address, postal address, phone number, the address of any website, or any other information which is intended to facilitate direct communication, in material which is posted via our services. Users must not place material on, or otherwise use, our services for any business or commercial purpose. Users must not use their access to our services, or information gathered from it, for the sending of unsolicited bulk e-mail (sometimes known as spam). You are responsible for ensuring that no material you post, or which is posted through a machine on which you access our services, nor any activity or communication you make in connection with any of our services, will be capable of (a) infringing the intellectual property or other rights of any person or entity, (b) breaching any applicable law, whether criminal, tortious or otherwise, or (c) appearing to be offensive, threatening, obscene, pornographic, false, unreliable or misleading.

10. Contact a Family's Role You acknowledge that we are not and cannot be responsible for the behaviour of users of our websites. We only provide a venue where our services may be accessed. In particular, you should be aware that Contact a Family cannot pre-screen or monitor all the material contributed by users.

11. Control of links to other sites Our websites may contain links to other websites. Such links are provided for your convenience only. Contact a Family does not control such websites and is not responsible for their contents. The mere inclusion of such links does not imply any endorsement of the material on those websites or any association with their operators. We cannot guarantee that these links will work all the time and Contact a Family has no control over the availability of the linked pages.

12. Requests for links from other sites If you only wish to link to a maximum of three pages on this site then you do not need to request permission. For descriptive text to accompany the link we suggest the following: "Contact a Family is a UK-wide charity providing support, advice and information for families with disabled children. The charity publishes a Directory of Specific Conditions and Rare Disorders and provides developmental advice to local and national family support groups." or "MakingContact.org is a service provided by Contact a Family (a UK charity which helps families with disabled children). The services aims to put those affected by disability in touch with each other in a secure and safe environment."

13. Payment If you are asked for, and provide, details of a credit, debit or charge card; in that event, you must ensure that (a) you are fully entitled to use that card, and (b) it has available funds sufficient to cover the charges which are deducted from it. As part of the payment process, you will receive a verification e-mail, the purpose of which is to take reasonable steps to ensure that the e-mail address you have nominated during payment is controlled by you.

14. Privacy policy Contact a Family's Privacy statement forms part of these Terms of Use.

15. Reporting Abuse If you see anything on our service which appears to infringe these Terms, then please e-mail: report.abuse@makingcontact.org . We do not generally monitor material contributed by users before it is placed on our websites, and so we are reliant upon users to point out any which infringes these Terms.

16. Disclaimer and Release Contact a Family has no control over or responsibility for the truth or accuracy of any material available on our services, whether provided by users or others. You should exercise no lesser degree of caution in appraising what you see on our service than you do offline. Even though users are prohibited from doing so, people may provide information, or otherwise behave, in a way that is unreliable, misleading or even illegal. Further, you should note that people may not necessarily be who they say they are. Your use of our services is entirely at your own risk. Accordingly, to the extent that the law permits, you release Contact a Family, its directors, contractors and employees from all liability arising out of or in connection with our services and the material included on our websites by users and other third parties.

17. Other terms If there is any conflict between these Terms and any rules or specific terms of use appearing elsewhere on this site relating to specific material, then those specific terms or rules shall prevail.

18. Illegal terms If any of these Terms should be determined to be illegal, invalid or otherwise unenforceable by reason of the laws of any state or country in which these Terms are intended to be effective, then to the extent and within that jurisdiction in which that Term is illegal, invalid or unenforceable, it shall be severed and deleted from these Terms and the remaining terms shall survive, remain in full force and effect and continue to be binding and enforceable.

19. Law These Terms and use of our websites shall be governed by English law. All claims or disputes arising out of or in connection with our websites shall be subject to the exclusive jurisdiction of the courts of England. However, Contact a Family shall have the right to commence and prosecute any legal or equitable action or proceeding before any court of competent jurisdiction to obtain injunctive and other relief in respect of the infringement of intellectual property rights.

20. Keeping these Terms of Use We don't separately file the individual Terms of Use entered into by users when they visit our websites. You can access them at http://www.makingcontact.org/weblegal.html. Please make a durable copy of these Terms by printing and/or saving a downloaded copy on your own computer.

Privacy statement

Contact a Family is committed to protecting the privacy of those who register with and others who visit our websites. Any personal details you supply to Contact a Family via e-mail from our websites, including any sensitive data, will only be used by Contact a Family and will not be made available to any Third Party without permission. However, you should be aware that if you use standard e-mail for communication with Contact a Family, we cannot guarantee that it remains confidential whilst in transit.

All e-mail sent through Contact a Family systems will be monitored and checked to ensure our systems operate effectively and securely. All e-mail messages sent through Contact a Family systems, to other members of this site may be recorded automatically for security and data integrity purposes.

In addition to this we do log your IP address which is automatically recognised by our Web Server. We will only collect information that is relevant to providing the service.

Given the global nature of the World Wide Web and with the exception of your real name and e-mail address ( which remain accessible only to you and authorised Contact a Family Staff ) any posting within this site by you is, of course, accessible to internet users around the world. You are advised not to include direct references to real people, institutions or organisations within the fields of your registration.

This privacy policy only covers our own websites; links within this site to external websites are not covered by this policy.

The following information does not form part of the Terms of Use.

Cookies

What are cookies?

Where are cookies used in www.cafamily.org.uk?

We use cookies in three ways on our site:

1. to ensure you don't receive our pop-up questionnaire more than once in 30 days.
2. to count how many different pages of the Contact a Family Directory Online you have visited in the last 30 days (not used if you subscribe).
3. to verify that you have a current subscription and to save you having to login every time you visit the site.

1. From time to time we use a popup to consult our visitors on various issues facing parents of disabled children. We use these consultations to try to get a better deal for such parents. Obviously nobody wants to keep seeing a popup they've seen before so we use a cookie to record the first time you saw it and to not show to you it again within thirty days.
2. In order to fund the work of the Contact a Family Directory online we require a subscription for anyone visiting more than five different pages in any thirty day period. Every time you visit a page from The Contact a Family Directory online it registers as one of your free accesses. We us a cookie to store the number of pages you have visited.
3. On your sixth access (within thirty days) you will be required to login as an existing subscriber or purchase a subscription. By storing your username in the second cookie we are able to automatically recognise you as a subscriber and - providing your subscription is current - we can pass you seamlessly to unlimited number of pages without the need for you to login every sixth page.

How to ensure cookies are allowed on your browser.

Cookies will work only if your browser allows them. Most browsers come already allowing cookies of the type we use but some are set to block them and this may lead to problems such as the popup appearing every time or a failure to login correctly.

Below we describe how to allow cookies in various types of browser. Select the browser you use and follow the instructions to check your settings allow cookies:

• Internet Explorer 6.x for Windows, 5.x for Windows , 5.x for Mac
• Netscape 7.x, 6.x ,4.x
• AOL 5.0 and above
• Opera 7.x, 6.x, 5.x
• Mozilla
• Phoenix
• Konqueror 2.x and above

In Internet Explorer 6.x for Windows

1. Select Tools > Internet Options.
2. Click the Privacy tab.
3. Change your Privacy settings to Medium-High or below. 
4. Click OK.

1. Select Tools > Internet Options.
2. Click the Security tab.
3. Verify that the Internet web content zone is highlighted.
4. Click the Customize Level button at the bottom of the Internet Options dialog box.
5. Scroll down to the Cookies section.
6. Verify that Allow per-session cookies (not stored) is set to either Enable or Prompt. If Disable is selected, change your settings to one of the other two options.
7. Click OK to close the Security Settings dialog box, and then click
8. OK to close the Internet Options dialog box.

1. Select Edit > Preferences.
2. Click the arrow next to Receiving Files to expand the list choices on the left.
3. Select Cookies.
4. Under When receiving cookies, verify that Never ask, Ask for each site, or Ask for each cookie is selected.
5. Click OK.

1. Select Edit > Preferences > Privacy and Security > Cookies.
2. Select either Enable cookies for the originating web site only (recommended), Enable cookies based on privacy settings, or Enable all cookies.
3. Click OK.

1. Select Edit > Preferences > Privacy and Security > Cookies.
2. Select either Enable cookies for the originating web site only (recommended) or Enable all cookies.
3. Click OK.

1. Select Edit > Preferences.
2. From the Category list, select Advanced.
3. Under Cookies, verify that either Accept all cookies or Accept only cookies that get sent back to the originating server is selected.
4. If Disable cookies is selected, change your settings to one of the other two options.
5. Click OK to close the Preferences dialog box.

1. Go to My AOL.
2. Select Preferences.
3. Click on www.
4. Select the Security tab.
5. Click on the Internet zone.
6. Click on the Custom button at the bottom of the window. The Security Settings window will appear.
7. Scroll down to the Cookies section. Select Enable.
8. Click OK.

1. Select Preferences... from the File menu.
2. Select Privacy
3. To enable: Select Enable cookies
4. Click OK

1. On the browser menu, go to File and select Preferences.
2. Then click on Privacy in the left hand menu and select Enable cookies.
3. Then click OK and click Reload on the browser menu when you return to the webpage.

1. Under File select Preferences.
2. In the Preferences window select Privacy.
3. On the right-hand side panel select Automatically accept all cookies.

1. Under Settings select Configure Konqueror.
2. In the Settings window, select Cookies.
3. On the right-hand side panel select Enable Cookies.

Shopping - Security, Cancellations, Returns and Refunds

Security

The Contact a Family Online Shop is hosted by http://www.free2build.com and industry standard secure servers to handle the credit card and personal details of orders are provided by http://www.sslhosts.com

We will never reveal credit card information to anybody else. We will never your pass your name and address details to any third party without permission. We may send you details of our work and some general information about us, but if you do not wish to receive this please uncheck the box at the bottom of the payment form.

Cancellations

For goods, you may cancel your order at any time prior to dispatch. For services under subscription, you may cancel your order at any time prior to your use of the service. Any such cancellations will entitle you to a full refund.

Returns

Our 30-day returns guarantee means that if for any reason you are unhappy with your purchase, you can return it to us in its original condition within 30 days of the date you received the item, unopened (with any seals intact) and we will issue a full refund for the price you paid for the item

We can only accept the return of opened items if they are damaged, defective or incorrect.

Refunds

If you are returning an item because of an error on our part or because it is damaged or defective, we will be happy to refund the delivery charges incurred in sending the item to you and we'll reimburse your costs in returning it to us.

By law, customers located in the European Union also have the right to withdraw from the purchase of an item within seven working days of the day after the date the item is delivered. Again, we will be happy to refund the delivery charges incurred in sending the item to you and we'll reimburse your costs in returning it to us.

Where you are withdrawing from your purchase between seven and 30 days after delivery, and there has been no error on our part, we will refund only the cost of the item. We will not refund the cost delivery.

You may receive a full refund if you cancel a subscription t,o or order of, a service, provided that you cancel the order within seven working days of the commencement of the service/completion of the order.

Donations

If you make a donation to Contact a Family through the website the information you supply about yourself will be kept securely on an internal database for financial purposes. You can choose not to receive any further information from us and your details will not be passed on to any other person or organisation.

Linking from Contact a Family's website

If you think Contact a Family would be interested in linking to your website please fill in the request form. We get several requests every week and our priority is to link to the sites of UK-wide support groups for specific conditions. It is not necessary to resubmit your request and because we receive several requests every week it is not possible to notify everyone individually. We reserve the right to choose which sites we include and will not enter into any correspondence about our decision process. Our policy is as follows:

Contact a Family aims to include links to websites that provide relevant and useful information for parent carers and their families, healthcare professionals and researchers working in the field. We will only provide links to websites that fulfil one of the following criteria:

1.1 organisations, associations and voluntary support groups providing information and support on:

• parental and family support, or
• rare disorders and syndromes, life threatening illnesses, or
• childhood and late onset diseases and disabilities
• discrimination and legal rights

1.2 lifestyle-related sites providing useful information on aspects of healthy living

1.3 UK government sites [England, Wales, Scotland and Northern Ireland] and relevant public sector organisations

1.4 professional organisations and journals aimed at healthcare professionals and medical researchers

1.5 research-related sites providing information relevant to syndrome and rare disease research

1.6 corporate sector organisations involved in a fundraising or sponsorship partnership with Contact a Family

1.7 if it is deemed appropriate to link to a website to provide specific information on products or services.

2. In addition to this criteria:

• we do not link to general health sites, unproven therapy sites, or individual personal websites
• we will not knowingly provide links to sites that contain illegal, offensive or misleading information
• where an organisation has regional or local services and associated websites, we will only link to their national website
• we will not knowingly provide links to sites that provide information about unproven therapies or products
• we aim to link to UK-based websites to ensure information is appropriate and relevant to Contact a Family 's stakeholders, and will only link to non-UK based websites when no equivalent website exists in the UK.

Links will be provided based on the above criteria and at the discretion of Contact a Family 's web team. Although we endeavour to check sites for high quality, accurate and appropriate information, Contact a Family does not endorse nor accept any responsibility for the content of other websites. We would caution all users to consult with their own healthcare team before making any changes in their management regime.

Feedback

We welcome your comments about any of our sites. Please e-mail web@cafamily.org.uk with your views or if you find any broken links, stating which website you are referring to.

Complaints

If you wish to complain about any aspect of Contact a Family's service, please e-mail complaints@cafamily.org.uk who will be pleased to explain our established complaints procedure.

Advertising and Sponsorship

Contact a Family is a charity funded by voluntary contributions and by donations and grants from trusts, companies and statutory bodies. Where sponsorship has been received, this is gratefully acknowledged on our website. Any advertisements are accepted on a commercial basis but are subject to our internal ethics policy. Contact a Family cannot accept responsibility for any goods or services supplied by advertisers or sponsors. All Contact a Family information is editorially independent and is not influenced by sponsors or advertisers.