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Sickle Cell disorders



If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online at community.cafamily.org.uk

Please see below for reliable medical information on Sickle Cell disorders produced by alternative providers.

NHS Choices

Although alternative links have been selected with great care, Contact a Family cannot accept responsibility for any inaccuracies or errors. Alternative information providers comply with the Information Standard and give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

The Sickle Cell Society

Tel: 020 8961 7795
Email: info@sicklecellsociety.org

The Society is a Registered Charity in England and Wales No. 1046631. It provides information and support to people affected by sickle cell disorders and their carers. The Society offers specialist services and welfare schemes for sickle cell sufferers.

Group details last updated June 2016.

Sickle Cell and Young Stroke Survivors (SCYSS)

Tel: 08000 842 809
Email: info@scyss.org

SCYSS is a Registered Charity in England and Wales No. 1120902. It provides information and support for children, young people and their families affected by sickle cell anaemia and childhood stroke.

Group details last updated June 2016.

Talk to other families about your child's condition

Our online community

Visit our online advice and support or read all about diagnosis.

You can also call us if you need information or advice on any aspect of caring for a disabled child. Monday to Friday, 9.30am to 5pm.

0808 808 3555 or helpline@cafamily.org.uk